I was born with a CHD called tetralogy of fallot. I've had 3 open heart surgeries to help repair my heart. I will at some pint have to back to have my conduit replaced, but we are doing everything we can to keep me as heart healthy as possible.
I was also born with a chromosone deletion called DiGeorge syndrome. Or 22q.11.2. This has caused me to have multiple issues like feeding trouble, reflux issues, walking and talking issues - but has not stopped me from loving life.
You can check out even more on our families website. Shawnandnicole.blogspot.com
Meet Our Families
Cole Ruotsala was diagnosed with Adreno Cortical Carcinoma on July 27, 2008. Eight short weeks later his life on this earth ended and his legacy began!
How Can I Help?
No family or child should have to fight this battle alone! With your involvement you can make a difference for families with children who are facing medical crisis.